Digitally-enabled rehabilitation for people with Long Covid (Living With Covid Recovery)

PROJECT STATUS: Ongoing
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START DATE AND DURATION: August 2020
Summary

It’s thought that up to 10% of people who have had COVID-19 go on to develop Long-Covid, symptoms of which can include feeling breathless, anxiety, aches and pains, loss of appetite, tiredness and fatigue.

This project aims to develop, deploy and evaluate a programme to provide effective and cost-effective rehabilitation to patients affected by Long-Covid, within the available NHS resources. 

There are three components to the Living With Covid Recovery programme: a clinical pathway (which varies by Trust); a digital dashboard which enables rehabilitation clinicians to review and advise large numbers of patients swiftly and effectively; and a patient-facing app which delivers physical and mental health treatment programmes to the patient, collects symptom data through validated Patient Reported Outcome Measures and allows two-way messaging between the treating clinician and the patient.

The Living With Covid Recovery programme has been developed in collaboration with the NIHR Applied Research Collaborations for Wessex (NIHR ARC Wessex) in partnership with University College London (leading), University of Southampton, NHS Trusts in London and a company called Living With.

IMPACTS

As of Aug 2021, the Living With Covid Recovery programme is currently helping to support over 1,500 patients across 23 clinics in 16 NHS trusts, with plans to roll out to more Trusts to meet the growing need for support.

Patients and health and care professionals have been involved and consulted throughout the development of the programme, to ensure that it provides the support they need.

On using the app, a Long-Covid patient said:"I started using the Living With Covid Recovery App in August and have found it very helpful in tracking my progress and building up my activity levels. 

One of the most important aspects for me is the connection to support and advice from my own physiotherapist and doctors through the App, which has helped reassure me and made me feel that I'm not alone."

Helen Craig from UCLPartners (our Academic Health Science Partnership and Living With partner) has written a blog on how patient and public involvement and engagement sat at the heart of the programme.

Two physiotherapists from Central and North West London NHS Trust, who have been involved in piloting the Living With Covid Recovery app within community settings, share their positive experiences of the programme.

Contact: Prof Elizabeth Murray elizabeth.murray@ucl.ac.uk

Partners & Collaborators

University College London

University College London Hospitals NHS Foundation Trust

Royal Free London NHS Foundation Trust

Barts Health NHS Trust

Camden and Islington NHS Foundation Trust

Southampton University

University of Exeter

Living With Ltd.

News
Lead Investigator
Henry Goodfellow (UCL)
Investigating Team
Fiona Hamilton (UCL)
Ann Blandford (UCL)
Delmiro Fernandez-Reyes (UCL)
John Hurst (Royal Free)
Melissa Heightman (UCLH)
Paul Pfeffer (Barts NHS Trust)
William Ricketts (Barts NHS Trust)
Richa Singh (Barts NHS Trust)
Hannah Hylton (Barts NHS Trust)
Stuart Linke (Camden and Islington NHS Trust)
William Henley (Exeter)
Kat Bradbury (Southampton)
Chris Robson (Living With)
Julia Bindman (Living With)
Resources
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