Webinar - Patient and public involvement in research and co-production: best practice and experience

06 May 2021

 

Thursday 6 May, 11am-12pm via Zoom

Engaging in research is vital in addressing questions that arise in health and social care, producing new evidence and research to improve patient care. 

This is the second of the new Activating Research webinar series presented by NIHR ARC North Thames Academy for frontline health and social care professionals. The webinar is intended as an introduction to patient and public involvement and engagement (PPIE) and co-production, and will broadly cover who is involved, what it is, why it is important, and how it can be done effectively. We have invited public contributors to share their experience of integrating PPIE into their work and provide real-world context for the session. The presentation will be followed by a Q&A session.

This series of webinars, presented by NIHR ARC North Thames Academy, is inspired by our Becoming Research Active in-person workshop.

Book your place on Eventbrite.

 

What will this webinar cover?

  • Define what co-production and patient and public involvement and engagement (PPIE) is and who it involves.
  • How to go about PPIE and co-production meaningfully with the example of the NEON study.
  • The role of the Clinical Research Network (CRN) and Research Champions (RCs)
  • Why PPIE and co-production are important and the benefits of including patients and the public
  • Experiences from public contributors about their experience of being involved in research

 

Who is this webinar for?

The Activating Research webinars are aimed at nurses, allied health professionals, public health or local government staff from NHS Trusts, NHS CCGs and Local Authorities. Participants might have done a Masters level module in collecting and analysing data, or critical appraisal of research, or have helped to support research in your organisation or attended another one of our Academy courses. It is not aimed at academics and/or researchers.

Find our more about the 'Activating Research' webinar series.

We have also launched a new course 'Becoming Research Active Online', which will run parallel to these webinars. Find out more about the Becoming Research Active Onlne course

 

Event supported by:

Dr. Silvie Cooper, Lecturer - Department of Applied Health Research, University College London, NIHR ARC North Thames Academy Lecturer

Charles Boonchareon - NIHR ARC North Thames Training and Engagement Coordinator


Chair

Tiffany Wade - Public Involvement/Engagement (PPIE) Lead, NIHR ARC North Thames & UCLH Biomedical Research Centre’s Deafness and Hearing Issues Theme

Deaf Awareness Associate Lecturer, King’s College London

Tiffany’s background is in Social and Cultural Psychology with a specific interest in deafness and hearing issues. She has been working alongside people with a wide range of deafness and hearing conditions for over a decade within co-produced research projects as well as co-designing and co-delivering undergraduate/post-graduate health education curriculums alongside patients and the public.

Her research experience includes qualitative and quantitative components of national clinical trials across physical and mental health conditions whilst working closely with patient and public representatives within the design, management, analysis and dissemination of these research initiatives.

She leads PPIE activties within NIHR ARC, North Thames and well as UCLH Biomedical Research Centre’s Deafness and Hearing Problems Theme and teaches Deaf Awareness in Healthcare within the School of Medical Education at King’s College London.


Speakers

Professor Monica Lakhanpaul - Professor of Integrated Community Child Health at UCL Great Ormond Street Institute of Child Health, Pro-Vice-Provost for South Asia

Professor Monica Lakhanpaul is an academic researcher, specialising in child health, practising paediatric consultant and has held numerous national and international leadership positions.  She is currently a Professor of Integrated Community Child Health at UCL Great Ormond Street Institute of Child Health where she is Pro-Vice-Provost for South Asia at UCL. She held the position as the first Clinical Director leading children’s guidelines for NICE and was the lead for the children’s theme for UCL Partners, Academic Health Science Network.

She is committed to improving the lives of those in the most vulnerable communities through holistic, cross-sectoral interdisciplinary interventions that encompass health, environmental and educational factors. She focuses on participatory and citizen science approaches in her work, ensuring that the communities she works with are involved at every step to provide the best outcomes for them. She has been recognised for her work in the public sector by the presentation to her of the Asian Women of achievement award. Most recently she has been awarded the British Science Association media Fellowship working with the BBC world service. She has over 180 publications to her name and a number of book chapters.

Professor Lakhanpaul has been directly responsible for the implementation of research into policy on several topics, including child fever and asthma policy guidelines; and is now leading the CHAMPIONS project to explore the impact of COVID-19 on children under-5 living in temporary accommodation and experiencing homelessness.

 

Christine Menzies - Patient and Public Involvement and Engagement Lead for NIHR CRN North Thames

Christine has been Patient and Public Involvement and Engagement Lead for CRN North Thames since September 2017.  During this time, she has built up a group of volunteer Research Champions across the region who help promote research locally and has also successfully delivered the annual NIHR Participant Research Experience Survey to monitor participants experience taking part in research for the past 4 years. The data has helped improve participants experience in research around a number of hospitals in North Thames.

Prior to becoming PPIE Lead, she was deputy Research Delivery Manager for Division 5 CRN North Thames for two years and Industry Manager for two of the London Cancer Research Networks for a further three years.  Before working for the Cancer Network, she held the position of manager of the Oncology Trial Team at UCH for eight years. She worked for the pharmaceutical industry for a number of years after graduating from Aberdeen University with a B.Sc. (Hons) in Pharmacology.

 

Sarah Brown - Research Champion for NIHR North Central Thames

Sarah Brown was one of the first Lay members of the British Heart Foundation’s (BHF) Clinical Studies Committee from 2016-19.

The Lay members were involved in assessing the Patient and Public Involvement (PPI) of the researcher’s funding applications to the BHF.  Sarah is member of the public panel of the BHF’s Big Beat Challenge and the patient panel reviewing PPI in the BHF and National Institute for Health Research (NIHR) Covid-19 Flagship Projects.

Sarah is also a Research Champion for NIHR North Central Thames. Sarah appreciates the role research plays in improving patients’ lives. Research has improved the awareness of Sarah’s under recognised and poorly understood heart condition.

Sarah is passionate about patients being involved in all the stages of clinical research as well as ensuring that a diverse group of patients possible can participate in research. This maybe through helping to produce patient facing documents in plain English, acting as a critical friend to research applicants or advising how to disseminate the results of research as widely and effectively as possible. She has been a patient advisor to several research applicants funding applications involving heart and circulatory conditions.

With three other expert patients by experience, Sarah has established the International Heart Spasms Alliance (IHSA) to provide a resource of evidence-based information for patients and clinicians. The initiative is supported by 25 world leading Cardiologists and researchers. It aims to improve the care of patients living with non-obstructive coronary artery disease (NOCAD) and develop further research studies.

 

Niccola Hutchinson-Pascal - Co-Production Collective

Niccola is part of Co-Production Collective, a co-produced community working to support the authentic co-production (not faux-production!) of research, service and policy development. Everyone is welcome. Together we learn, connect, and champion co-production for lasting change.

Niccola has worked for a wide variety of organisations across health, well-being and physical activity, from charities, to government related bodies, to large agencies. All of these roles have had a focus on culture change and involved her working closely with the public, patients and local community members.

She is passionate about co-production, about all parties communicating on a level playing field, sharing power and decision making and about ensuring organisations are aware of the value gained from this way of working.